Amanda Steel is flicking through last year's diary, trying to pinpoint when this nightmare began. It was the summer holidays when she first noticed that Carly, her eldest daughter, was seriously out of sorts.
'Anyone who knew Carly before will tell you what a chatterbox she was. She had so much energy she drove us mad. But suddenly, she was a different girl. It was heartbreaking to watch,' says Amanda.
'I struggled to wake her in the mornings and she barely spoke all day.'
Carly Steel, 13, has aching joints and suffers from blackouts. She has not attended school since September
By August, 13-year-old Carly, was barely ever awake. Consumed with exhaustion and complaining of dizziness, she was confined to the bed or the sofa, and had to grip the furniture to steady herself whenever she took a few steps.
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